About the Program
- The Alaska Birth Defects Registry (ABDR) established in 1996 under the Alaska Administrative Code (7 AAC 27.012).
- Health care providers, hospitals, and other healthcare facilities are required to report to the ABDR when they have cared for achild with a birth defect listed as a Condition Reportable to Public Health. A list of Alaska’s reportable birth defects and their International Classification of Disease Version 10(ICD-10) diagnosis codes is presented below.
- Public health surveillance systems such as the ABDR provide information on the occurrence and distribution of reportable health conditions within populations.
Registry Data Uses:
- - Estimate the prevalence of congenital anomalies within populations and investigate unusual patterns of occurrence.
- - Monitor the prevalence of birth defects in populations with identifiable or preventable exposures, and determine whether known exposures have increased the risk of birth defects.
- - Conduct analytic studies of high prevalence conditions to elucidate possible etiologies and prevention strategies.
- - Provide scientific foundation for evidence-based decision making.
- - Observe and evaluate the effects of interventions and policy changes.
- ABDR conducts passive surveillance with data collection relying on mandatory reporting by health care providers.
Surveillance protocols for the state of Alaska are as follows:
- - The reporting facility screens patient records for reportable ICD-9 codes
and submits quarterly reports to the ABDR.
- - Reports to the ABDR include: date of service, child’s name, birth and diagnosis date,
- - The ABDR is a multiple-source registry, collecting information from major hospitals, specialty clinics and medical record aggregators.
- - A single child may be reported to the registry several times from multiple agencies, and for one or
more congenital conditions.
- - Unique individuals are linked to Vital Statistics data to establish in state birth.
- - Data is maintained for all unique individual and defect combinations reported.
- - Individual data and
personal identifiers are not released by the registry. Only summarized data are reported.
- - A copy of the Alaska Birth Defects Registry Reporting Guide is included as a link.
Congenital Defect Codes (ICD-10)
- D55 - D900, D55 - D589 Anemia
- D6107 Constitutional aplastic anemias
- D6109 Constitutional aplastic anemias
- D80 - D899 Immunodeficiencies
- E00-E900, E00 - E009 Congenital iodine-deficiency syndrome
- E030-E039 Congenital hypothyroidism
- E25 - E259 Adrenogenital disorders
- E70 - E729 Metabolic disorders
- E74 - E7429 Metabolic disorders
- E76 - E769 Metabolic disorders
- E7871 Other specified congenital anomalies
- E7872 Other specified congenital anomalies
- E80 - E807 Metabolic disorders
- E84 - E889 Metabolic disorders
- G11-G95, G11 - G129 Spinal disorders
- G31 - G3289 Degenerative diseases of nervous system
- G71 - G737 Primary disorders of muscles
- G80 - G809 Cerebral palsy
- G901 Familial dysautonomia [Riley-Day]
- G910-G912 Hydrocephalus
- G937 Other disorders of brain: Reye's syndrome
- G94 Other disorders of brain in diseases classified elsewhere
- H35-H920 and H3552 Pigmentary retinal dystrophy
- H49819 Kearns-Sayre syndrome
- H90 - H9193 Hearing loss
- P00 - P049 Certain conditions originating in the perinatal period
- Q00 - Q999 Congenital malformations