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Alaska Birth Defects Registry

About the Program


What is the Alaska Birth Defects Registry?

Established in January 1996 under the Alaska Administrative Code (7 AAC 27.012), the Registry is a surveillance program that provides reliable, valid, and timely information on the number of infants and young children with birth defects in Alaska.

The Registry:

·        Collects data on children born in Alaska with congenital birth defects.

·        Develops population estimates for the occurrence of these conditions based on the data collected.

·        Monitors trends to learn more about the occurrence of birth defects in Alaska.

·        Provides timely data to public health programs and health care professionals for use in planning and evaluation.

Goals:

·        Streamline the acquisition and accuracy of the acquired data.

·        Improve the accuracy of the prevalence estimates.

·        Reduce the time intervals in data, processing and analysis.

·        Provide a baseline for the advancement of science and public health through birth defect monitoring.


The Alaska Fetal Alcohol Syndrome (FAS) Surveillance Project which was part of a collaborative effort with the Centers for Disease Control and Prevention (CDC) has been terminated and is now integrated with the Alaska Birth Defects Registry (ABDR). The ABDR systems collects and maintains passively reported International Classification of Disease (ICD) codes from medical and other providers across the State that are specified as reportable conditions in State Statute. ​​The FAS data available will continue to be limited to the ABDR passive collection system until additional funds can be acquired to develop an adequate surveillance methodology that can provide accurate and timely prevalence estimates of the full spectrum of Fetal Alcohol Syndrome. 

 

Please contact the registry at: 

ABDR Data Manager
Maternal and Child Health Epidemiology Unit
Section of Women's, Children's and Family Health
Division of Public Health
Alaska Department of Health and Social Services
3601 C Street, Suite 358
Anchorage, AK 99503

(907) 269-8097 Phone
(907) 754-3529 fax

hssbirthdefreg@alaska.gov

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